Dan wearing Hamblin Prism glasses
Autumn has arrived and with it a flurry of activity on our prism glasses project. We’ve submitted a research paper describing the results of our prism glasses survey which combined the data from our original research (see HERE for a summary) with some new data collected by Alexis as part of the Dunhill Medical Trust study. We are hopeful for some kind reviews! We’ve also been progressing with our PPIE work, and the PSP Association were kind enough to invite Dan to thier PRIM group meeting. The meeting produced some really interesting insights, and we’ll be taking those on board as we revise our research plan. Something else that became very clear from both our research paper and meetings with patients and carers is that there is very little information out there about which prism glasses might be useful for PSP, so we’ve added a bit more information about different prism types to our website. To get a more direct experience, Dan ordered some prism glasses and has been wearing around the house to see how they feel (he reports it makes it very hard to take a good selfie…). We’ve also had meetings with Prof Chrystalina Antonaides (Oxford) and Dr Lisa Alcock (Newcastle) to take the first steps towards a collaborative project looking at whether prism glasses might help with mobility and we are hoping to arrange a second survey study of prism glasses with the PSP Association.
Progress also continues with the Dunhill Medical Trust project on attention and memory in PSP. Alexis is contining to recruit people for his age matched control group, and presented a poster showing that people with PSP have a profound deficit of visual search at Neuro 2024 in Toronto (although he nearly didn’t make it after his flight got cancelled at the last minute!). Dan will present these results at the upcoming meeting of the British Neuropsychological Society in London later in November.
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