It has been a very busy few months! The biggest development was the favourable opinion from the NHS Research Ethics Committee for SpBellsPSP, and the confirmation of C&C at the 1st two NHS sites. We also had a training session with the RRDN agile team, who came up with some great suggestions we’ve incorporated into the Bells test app, and so we are getting very close. We’re a little bit later than I’d hoped, but we are now on target to open by the end of the June, which is very exciting.
On the publication front we are waiting to hear back from Brain Communications after a revise and resubmit decision. This paper describes the key outcomes from Alexis’s project on visual search in PSP and Parkinson’s, and we’ve got our fingers crossed for a positive outcome. A second paper on User Perspectives on Prism glasses for rehabilitation of PSP was accepted by Journal of Visual Impairment, but unfortunately is stuck in a publication queue and is not slated to come out until August. You read a summary of this research here. TL:DR? Lots of people have tried prism glasses, not many people like them, but they might be helpful for eating and reading.
Bobbi Childley joined the project to do a PhD under the supervision of Soazig. Bobbi has made a great start, and will start working with people with Parkinson’s disease next week.
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